SYLVANIA, Ohio-Fifteen-year-old Emily Baron of Sylvania battles neurofibromatosis, a condition causing tumors to grow on her nerves. Initially mistaken for birthmarks, her diagnosis entails frequent medical appointments and missed school due to treatments.
Regular MRIs monitor tumors on her brain, eye, and spine, with upcoming surgery to remove a tumor near her optic chiasm, risking her vision. Despite challenges, Emily remains positive, aspiring to become a cosmetologist. May marks NF Awareness Month, with a fundraiser on May 17 to support families like Emily’s.