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The Cost of Coverage: Health insurance denied nursing services for 13-year-old girl with rare syndrome

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At only 13, she has sometimes felt worthless.

After all, Ella Marquette’s health insurance company recently denied her private duty nursing services that help keep her alive.

“Without the nurse at night… I could die,” Marquette said.

Without warning

She was born with Crouzon syndrome, a rare genetic condition that causes abnormal development of skull and facial bones.

Since she was 6 months old, her health insurance had covered nursing services to help keep her safe.

But, without warning, Anthem Blue Cross Blue Shield stopped coverage last September.

https://www.news5cleveland.com/news/local-news/investigations/the-cost-of-coverage-health-insurance-denied-nursing-services-for-13-year-old-girl-with-rare-syndrome

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